"Formacation" (not to be confused with fornication)! :)
http://www.psychologytoday.com/blog/odd-curious-and-rare/200911/formication
I was experiencing this last night. My left shoulder was spasming and I started getting a weird little "twinge" in my scalp on the left side. Then it progressed to a larger twinge, and finally felt exactly like an ant was crawling on my head! I've had this before on the other shoulder. This article says it's odd, curious and rare but I know two other people who have this! My mom has it from her fibro, and my former massage therapist has it from a herniated disk in his back.
Strange, no?
Hi Sarah, thank you so much for writing about your experience with EDS. I'm 23 and just got referred to John's Hopkins to get my official EDS type and diagnosis. I'm a little scared because I'm afraid of what this will do to insurance over my lifetime, have you had any experience with companies refusing to insure you or not covering your EDS appointments?
ReplyDeleteI'm not sure if you wrote about it on here already, but how was your EDS during pregnancy? Did you find that the pregnancy changed your EDS symptoms permanently or just while pregnant?
Thanks again!
Hey there, no problem. It's a lot better when you have someone to share with! :)
ReplyDeleteMy EDS is not on my official medical records. Not really sure how that happened but I'm not complaining! I live in a small town so my doc here laughed at me - literally - when I brought up the topic. I went to another doc (EDS specialist) who diagnosed me, and his notes never made it into the computers here. The treatment is the same regardless; I have an orthopedic doc who really understands hypermobile shoulders. He just doesn't label it EDS or hypermobility syndrome! So unfortunately I can't give you advice on that. I hope that some type of health reforms are passed SOON that will protect us from insurance companies. It seems pretty likely that part could go through right away.
My EDS didn't bother me too much until AFTER my pregnancy. My son was 2 when I started falling apart! Before that, I only had the heart issues which we thought was just a random problem. I didn't "connect the dots" until I started investigating why my head and neck hurt constantly. Then I was like oh yeah, it makes sense now! I was born premature with an umbilical hernia, my feet turned in and I had to wear special shoes, I had really bad coordination and zero upper body strength. Then came the heart probs., then the spasms and headaches.
I do think something about the pregnancy stressed my body out. Not sure if it was the Chiari, thyroid, or what but something definitely was affected. I didn't know I had EDS at the time so now I would probably think about it differently than I did then. He is 11 and already having headaches and muscle spasms :(
Hope that helps!