Endoscopy report!

Oh my goodness they actually found something this time. That's all I can think ;-) I wasn't sure whether to hope for finding SOMETHING or finding NOTHING... in the end they found at least four issues!!!! Going in, my stomach was extremely crampy because I'd eaten some salad and some cheese the day before. Not smart. After I'd already been hooked to my IV I had to run into the bathroom. Rather embarrassing! The nurse asked if it was nerves and I said no - it was probably from what I'd eaten the day before. The nurses who prepped me were a bit impolite and that didn't help my stomach calm down. They asked me if I'd lost weight and I said yes, 20 lbs. They said "WHAT????!" in shocked tones. I was like ummm yeah that's why I'm here. (Kind of rude, if you ask me.) But the nurses in the procedure area were very nice. It all went very smoothly and I had very little pain.

They said I would be too groggy to remember any of this but I heard everything the doctor said afterwards. He said I had gastritis, possible heliobacter pylori, damage from celiac disease and problems with stomach emptying. Apparently there was a pill just sitting in my stomach not going anywhere?! The stomach emptying was the "kicker" for me - I had heard of that happening with EDS but I didn't really consider it. But apparently that has been the main issue! They sent me home to rest and scheduled a gastric emptying study for the following week.

I went home and rested for the day, watched TV and chatted with my mom who'd been my chaperone. I kept waiting for my throat to hurt but it really didn't at all. I was just sort of tired. The next day I got a migraine probably just from the stress. THAT WAS IT! A pretty simple test and I felt so vindicated that I've been right all along about what was wrong with me; problem was I just took too long to get it checked out and/or the symptoms were too vague to get anyone to take them seriously! And the gastroparesis/slow stomach emptying is a total EDS and Chiari "thing" which also makes me feel vindicated after all these years. So in a way I was happy to find out all these things were wrong with me so at least now I can do something about it. And most of all now people will know I AM NOT CRAZY! :-)